ALS is like a lit candle: it melts your nerves and leaves your body a pile of wax.. you cannot support yourself standing.. you cannot sit up straight. By the end, if you are still alive.. your soul, perfectly awake, is imprisoned inside a limp husk.. like something from a science fiction movie, the man frozen inside his own flesh.
by Mitch Albom
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In "Tuesdays with Morrie," author Mitch Albom poignantly explores the devastating effects of ALS, comparing it to a burning candle that slowly consumes the body, leading to severe physical limitations. As the disease progresses, individuals lose their ability to support themselves and maintain a normal posture, creating a stark contrast between their vibrant minds and deteriorating bodies. This imagery highlights the tragic loss of autonomy that ALS patients endure.

The quote encapsulates a profound emotional experience, illustrating a trapped existence where the soul remains alert and aware, but the body becomes an unresponsive shell. This haunting description evokes the poignant reality that, despite the bodily decline, the essence of a person persists within, resembling characters from science fiction who are encased in their own flesh. Albom's book serves as a tribute to the human spirit amidst the challenges of illness.

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January 22, 2025

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